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While the guide provides general information it did not convey to me the true seriousness of this/my condition. Time and time again I've met survivors who were totally unaware of the risk of lymphedema because 10% as quoted, is a seemingly very small risk. My research indicates that up to 50% of survivors will develop lymphedema though not all will recognize it as such. Family doctors, even experts in hospitals -nurses, surgeons and plastic surgeons were completely unaware or dismissive of the condition so advising people to consult their family doctor or go to a walk in clinic won't provide proper guidance or treatment. I was assured that I had either injured my hand or it was arthritis by two separate doctors. Though you recommend exercise to keep the fluid moving, why did you not provide diagrams to illustrate what can and should be done to stimulate the lymph nodes through self massage techniques? Such self help is essential especially for people living outside major centres where getting proper help ( CDT) is largely unavailable.

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Thank you for your very thoughtful posting and for your suggestion for diagrams showing how to do self-massage (CDT). We are in the process of reviewing videos through a research study that show this activity and they will be posted on Caring Voices when that study closes. We recommend that you check back regularly. Thank you for being an active member of the community.
Sara Urowitz,
Professional Lead, Caring Voices Project

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Thank you for the guide. Most cancer-related resources are U.S. based and this provided me with Canadian specific information I can now use.

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